Resources and information about Acute Respiratory Distress Syndrome

Here are some links to resources and information about ARDS. If you know of a resource that should be listed here,Please use our to let us know! We've listed the links under these categories:

The ARDS Mini Conference DVD is now available.

Information about ARDS
General ARDS Related Links
Specific ARDS Related Links
ECMO-Adult & Children
ARDS Equipment and Items
Children's Respiratory Issues
Pulmonary Rehabilitation Sites
General Post ARDS Issues
Specific Post ARDS Links
ARDS and Pregnancy
Oxygen
Ventilator Links
Other Lung Links
Hope and Support
Support Links
Ards Book now available
Other Links of Interest
Grief Links
Self Help Center
Sepsis
Prescription Drug Assistance
American Thoracic Society

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Information About ARDS

Click here: What is Acute Respiratory Distress Syndrome?

American Lung Association Call Center - The call center staff is composed of Registered Nurses and Respiratory Therapist. All of their staff has extensive experience in the treatment of ARDS. Their toll free number 1-800-548-8252.
Information provided by the American Lung Association is not a substitute for medical advice or treatment and the ALA recommends consultation with your doctor or your health care professional.

Breathless in Seattle: The Unknown Killer (ARDS) and Chronic Lung Disease - This video program describes Acute Respiratory Distress Syndrome, those likely to contract it, and how research in this area is saving lives. In contrast, experts will describe how chronic lung disease develops and explore transplantation and lung volume reduction surgery.

Speakers: Leonard Hudson, M.D., professor of Medicine, division head of Pulmonary and Critical Care Medicine, and endowed chair in Pulmonary Disease Research, University of Washington School of Medicine; Joshua Benditt, M.D., associate professor of Medicine, medical director of Respiratory Services, associate professor, Medicine/Division of Pulmonary and Critical Care, University of Washington School of Medicine

American Association for Respiratory Care - The AARC is a professional membership association for respiratory care professionals and allied health specialists interested in cardiopulmonary care.

Inhaled Nitric Oxide Gas Therapy and ARDS

American Lung Association -

Nitric Oxide - New Treatment? Inhaled Nitric Oxide for ARDS Following Pulmonary Resection

National Jewish Medical and Research Center - #1 Respiratory Hospital

Pulmonology Channel

National Institutes of Health - This is the official web site of the National Institutes of Health (NIH). The National Institutes of Health is one of the world's foremost medical research centers. An agency of the U.S. Department of Health and Human Services, the NIH is the Federal focal point for health research. NIH is the steward of biomedical and behavioral research for the Nation. Its mission is science in pursuit of fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to extend healthy life and reduce the burdens of illness and disability.

Acute Respiratory Distress Syndrome - May 1, 2002 - American Family Physician

A Family Guide to Adult ECMO - ECMO stands for ExtraCorporeal Membrane Oxygenation. It is the use of an artificial heart-lung machine for patients whose heart or lungs are failing despite all other treatments.

ARDS Net - Home

RT Article: - Newest Concepts in Managing ARDS

RT Article:- Ventilation and ARDS

News - Survival in Acute Respiratory Distress Syndrome Patients May Improve With Continuous Haemodiafiltration

Concepts in Critical Care - Abbreviations and respiratory terms

Acute Respiratory Distress Syndrome - A Historical Perspective

The ARDS Foundation Canada

General ARDS Related Links

The Merck Manual of Diagnosis and Therapy - Technical information about the disease

EMedicine.com - offers pictures of the condition

Doctor's Guide - Researchers propose new treatment for ARDS

Webb-Waring Institute - Cancer, aging, and antioxidant research for disease prevention - Webb-Waring Institute.

RT Magazine

ICU-USA -Information about medical conditions, treatments, test, equipment, durgs, medical terms and many other aspects of the ICU.

Specific ARDS Links

BOOP vs. ARDS Bronchiolitis Obliterans Organizing Pneumonia versus ARDS

Pregnancy and ARDS

Swallowing in Patients with Tracheotomies

Thorax-an International Journal of Respiratory Medicine

Virtual Hospital: ElectricDiffuseLung: The Diagnosis of Diffuse Lung Disease: CXR And Chest CT Images -The site shows lungs, including a normal lung and the last photo shows an ARDS lung.

Article about Hospital acquired infections

ARDS and Pregnancy

Pulmonary Problems During Pregnancy

Intensive Care

Pulmonary Disease and Pregnancy

Shock and Pregnancy

American Journal of Respiratory and Critical Care Medicine

Implications for the Pregnant Patient - Article by Lucy A. Campbell and Robert A.Klocke Department of Medicine, State University of New York at Buffalo, Buffalo, New York

Pre-eclampsia and eclampsia

Acute Respiratory Distress Syndrome in Pregnancy and the Puerperium: Causes, Courses, and Outcomes

Adult respiratory distress syndrome due to blastomycosis during pregnancy

ECMO-Adult & Children

ECLS at the University of Michigan

ARDS Equipment and Items

RehabMart Discount Medical Equipment - online discount medical equipment and supply company that is owned and operated by occupational and physical therapists

Definitions of Pulmonary Terms - COPD and chronic lung disease acronyms, abbreviations and pulmonary definitions

Pulmonary Monitoring with Graphics - Graphics give us the ability to create a bio mechanical organism for the time needed to heal the lungs.

Children Respiratory Information

Children and ECMO - (Extracorporeal Membrane Oxygenation) Describes what ECMO is and how it is used

Pediatrics Respiratory Distress Syndrome - Although originally described in adults, acute respiratory distress syndrome (ARDS) occurs in children of all ages as well

Children and ARDS - Mechanical Ventilation

IntensiveCare - Supporting Evidence-Based Practice in Critical Care Medicine

Pulmonary Rehabilitation Sites

Pulmonary Rehabilitation for COPD - Rehabilitation therapy basically consists of exercise, ventilatory therapy, ventilatory muscle training, and respiratory muscle resting. Nutritional and psychological support round out the program.

Pulmonary Exchange - provides dignified care to patients in their homes.

General Post ARDS Issues

ARDS OUTCOMES: LOOKING Beyond the ICU Doors

Pulmonary Function Testing - gives a great description of the pulmonary function test and what it all means, and every survivor has a PFT.

Association of Academic Physiatrists - these are doctors who specialize in physical medicine and rehabilitation.

Post Traumatic Stress Disorder Alliance - Learn more about Post Traumatic Stress Disorder which is something almost all survivors experience after ARDS.

Facts for Health--Post Traumatic Stress Disorder-Who gets ptsd?

ARDS Exploratory Study Results - Discusses the relationship between cognitive performance and employment and health status in long-term survivors of the acute respiratory distress syndrome.

LifeSystems Canada Emergency Response System - At the touch of a button,they can provide 24-hour help or assistance.

News - Patients with Acute Respiratory Distress Syndrome at Increased Risk of Posttraumatic Stress Disorder

Specific Post ARDS Issues

Immune Deficiency Foundation - A National non-profit health organization dedicated to improving the diagnosis and treatment of primary immune deficiency diseases through research and education

Free Prescription Medicine Available to those who Qualify - a volunteer program providing assistance to uninsured financially challenged individuals.

Antibiotic Resistance

No Air to Go - Learn about Idiopathic or Interstitial Pulmonary Fibrosis and Sarcoidosis from educational information and patients sharing experience of chronic lung disease. Pulmonary glossary written for support group use, forum and the No Air Cafe chatroom

Important Info for people who have disabilities as a result of ARDS - Americans with Disabilities Act

Medicare Personal Plan Finder

Time and Energy Management - Pacing yourself - how to make things easier, doing things around the house

Foot Drop

Oxygen

Breathin' Easy - A guide for travelers with pulmonary disease

Oxygen Supplies - complete line of respiratory care products

Nidek Medical Rrespiratory Therapy Products

Click here: Liquid O2

Pulmonary Paper

APRIA HEALTHCARE Welcome - Home Healthcare-A better Way

Ventilator Links

Vent Weaning -The site is intended to provide information and a discussion forum for families of ventilated patients, many of who suffer from ARDS.

Sepsis

ARDS and Sepsis Brochure - by The ARDS Foundation(279kb)

Surviving Sepsis

Sepsis Alliance

Understanding Sepsis - A Booklet from the ISF

Hope and Support Links

A Gentle Approach: Interacting with a Person Who is Semi-Conscious or Presumed in Coma

With Every Breath I Praise Him

The Miraculous Healing of Jack E. Yonts II

Pastor Yonts Book Pastor Jack Yonts recounts his and his family's faith as he struggled with and overcame Acute Respiratory Distress Syndrome. Currently, Pastor Yonts is the Senior Pastor of thriving church in Menasha Wisconsin, as well as the presbyter over 19 churches in north eastern Wisconsin. Married 19 years and the father of two beautiful girls, he has much to live for, and its a miracle he is alive. In 1999, he was hospitalized with pneumonia and within hours was in the battle for his life against ARDS that lasted for 97 days in ICU. Jack's book is just another chance for him to share with others words of encouragement and faith. Cost for 'With Every Breath I Praise Him' is $10.00

For more information, contact Pastor Jack Yonts at 1445 Midway Rd Menasha, WI 54952, Phone:920 734-4444 or by email at:

Support Links

Coma Recovery Association - Coma Recovery Association, Inc. offers mutual aid and support, support group meetings, general information, referrals and advocacy.

Med Help International - Providing patient information via our online medical center. Interactive question and answer forums staffed by online doctors, extensive library of articles on all diseases and health conditions. (heart, neurology, child behavior, dermatology, mental health, gastroenterology, addiction, etc.)

Body, Mind & Spirit by Pastor Ian

Ards Book now availabl

"Elements of Healing" ARDS survivor, Dr. Stephen Yarnall of Edmonds, Washington, has written a book entitled "Beyond Medicine" which focuses on Love, Prayer, Humor, Touch, Music and Pets in the recovery phase of ARDS. For more information you can contact Dr. Stephen Yarnell at: yarnsy@attbi.com

Young Lung online support services - provide support and information for the Teen and Young Adult Population living with various Chronic Lung Conditions

Grief Links

The Compassionate Friends - for parents whose children have died

GriefNet: Support Group, Memorial Garden, and Resources is an Internet community of persons dealing with grief, death, and major loss.

Helping through the Grief

Healing after Loss

Prescription Drug Assistance

Free Medicine Foundation

Medicare.gov

Merck Programs to help those in need

Needy Meds

Partnership for Prescription Drug Assistance

RX Assist

WeHelpMeds

Self Help Center

Patient Advocacy Coalition
Some seriously ill patients have found themselves unable to obtain the treatment recommended by their physician, because of a dispute about insurance coverage. Such disagreements usually involve complex contractual issues, which are typically difficult to resolve. The Patient Advocacy Coalition, Inc. believes that a patient, who is already experiencing the stress and anxiety that always accompany serious illness, should not be subjected to the additional stress of doing battle over the terms of his or her insurance coverage. There is an easier way, and it is premised on education, representation and collaboration.

Health Care Proxy Awareness

Health Care Proxy (Mass)

US Legal Forms-Health Care Forms
All States allow a person to make decisions concerning their health care. You can search for health care directives, Power of Attorney for Health Care or Living Will, for your State and purchase the appropriate forms from this site.

Center for Denied Health Insurance Claims
Have your healthcare claims been unfairly denied? Have you been prevented from obtaining the treatment you need because your health insurance provider has refused to pay? Check out this resource for more information if you are this person...

AARP

Inpatient Rehabilitation Facilities

Click here: Highway 2 Health - Home Page

Department of Health and Human Services, Office for Civil Rights, HIPAA

Social Security Online