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Gordon D. Rubenfeld,
MD MSc
Associate Professor Division of Pulmonary and Critical Care Medicine Box 359762 Harborview Medical Center 325 9th Ave Seattle WA 98104-2499 FAX: 206.731.8584 |
| Survivor and family survey to identify problems and solutions after ARDS |
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| Q1 | I am a survivor of ARDS (if NO, skip to Q6) | ||||||||||||||||||||||
| YES | |||||||||||||||||||||||
| NO | |||||||||||||||||||||||
| Q2 | Current AGE Years ______ | ||||||||||||||||||||||
| Q3 | Year in hospital with ARDS 19 ___ | ||||||||||||||||||||||
| Q4 | Reason you had ARDS (check one) | ||||||||||||||||||||||
| Pneumonia | |||||||||||||||||||||||
| Trauma (motor vehicle crash, etc) | |||||||||||||||||||||||
| Inflammation of pancreas | |||||||||||||||||||||||
| Pregnancy | |||||||||||||||||||||||
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After major surgery | ||||||||||||||||||||||
| Chemotherapy | |||||||||||||||||||||||
| Other ________________ | |||||||||||||||||||||||
| Don't know | |||||||||||||||||||||||
| Q5 Who helped you get better after your ARDS? (check all that apply) | |||||||||||||||||||||||
| Husband/Wife | |||||||||||||||||||||||
| Brother/Sister | |||||||||||||||||||||||
| Children | |||||||||||||||||||||||
| Other family members | |||||||||||||||||||||||
| Co-workers | |||||||||||||||||||||||
| Friends | |||||||||||||||||||||||
| Myself | |||||||||||||||||||||||
| Other ________________ | |||||||||||||||||||||||
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Q6 |
We are very interested in the problems you encountered as you (or your loved one) recovered from ARDS. This includes medical problems like skin ulcers and pain, psychological and social problems like depression and getting back to your regular life, and other physical problems like weakness, numbness, and mobility. | ||||||||||||||||||||||
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If you need more space, just continue on another sheet of paper - label your answer. |
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Q7 |
We would like to know about treatments, resources, or clinicians that you (or your loved one) found to really improve your recovery after ARDS. Tell us as much detail as you can about the things that helped you get better once you left the hospital. | ||||||||||||||||||||||
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If you need more space, just continue on another sheet of paper - label your answer. |
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| Q8 | We would also like to know about treatments, resources, or clinicians that you (or your loved one) tried but found that they really didn't help you much at all. Tell us as much detail as you can about the things you tried that didn't work. | ||||||||||||||||||||||
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If you need more space, just continue on another sheet of paper - label your answer. |
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| Q9 | Finally, sometimes people run into problems getting the services they need. Tell us about the problems you had with insurance companies, hospitals, transportation, and doctors or other clinicians in trying to get treatments after ARDS. | ||||||||||||||||||||||
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If you need more space, just continue on another sheet of paper - label your answer. |
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| Thank you for your time in filling out this survey. | |||||||||||||||||||||||