The Ards Foundation
ARDS Foundation of Illinois
ARDS Stories

If you would like add your story, Please use our Contact Form .
The stories will be edited for length so that we can include as many as possible.

Go to ARDS Kids Stories

QUICK LINKS

Click here to jump to any of the following ARDS stories.
(In Alphabetical Order)

Amanda
Nathaniel Adamczyk
Lizzy Ball
Candi Bartlett
Tricia Becker
Sandra Bell Meyer
Dan Bennett
Bill
Jackie Binder
John Bolasky
Rhonda Bova
Angela Bowen
Brad
Donna Brady
Brandy
Terry Brannan
Silvana Breur
Bryan
Carlos
Gary Chasles
Chris
Christian
Chuck
Debra Clifton
Wilma Jean Cochran
Lester Cohen
Kristiana Creamer
Patrick Cuff
Michelle D.
Dee
Doug
Michelle Renee Duffy
Greg Fleckenstein
Trish Framel
Frank
Fred
Cynthia Gardiner
Mike Gillespie
James Graham
Sheryll Graham
Greg
Jane M. Gruby
Shelia Haefling
Rhonda Hager
Mary Jo Hamilton
Marlene Harris
Rilee Higley
Donna Hild
Janice
JeanMarie
Jenny
Jeralyn Hines
Jordan
Judith Hoffman
Jackson
Bob Jayroe
Jennifer
Joan
Emma Johnson
Mel Johnson
Mark Kardasz
Kim
Betty Koontz
Penny Kraemer
Kristen
Deb Kuhn
LoriBeth
Zoe Erin Lambert
Kasey and Abigal Lee
Monique Levesque
Stephanie Linebaugh
Karen Linen
Mark A Lowery
John Manikowski
Mark
Barbara Marshall
Mechelle
Eddie Mercado
Jim McAuley
Carolyn McFarland
Ivora McKenzie
Mel and Rose
Nicole Milbury
Louise Montgomery
Cathy Montz
Lafrieda Morris
Alan Moses
Sue Moul
Nellie
John Nelson
Judy Otteson
Stefan Parmenter
Peter
Constatine P. Peterson
Ilene Pinkerton
Brenda Ramsland
Rhonda
Melanie Raczka-Sinasac
Diane Rasa
Linda Root
Dana Raymer
Jeffrey Rogers
Abraham Rothstein
Julie Russell
Russell and Suzanne
Amy Sadler
Sandy
Sarah
Sarah Beth
Linda M. Scrutchfield
Courtney Shelstad
Kristy Shultz
Sara Siak
Linda Silva
Shirley Simmons
Lisa Snow
Sophia
Sue
Susan
Meg Tapucol-Provo
Sarah Elizabeth Hoffman Teal
Teresa
Tina
Amanda Tissen
Nina Vasconino
Vicky
Cyndy Villegas
Stephen R. Yarnall, M.D.

ARDS Survival after Cancer Diagnosis: Stefan Parmenter

Photo of StefanIn April 2004, when Stefan Parmenter was diagnosed with Lung Cancer, he thought he might be resistant to the drugs that would treat him. Stefan, at forty-seven years, had been drinking ten pints of Lager and smoked sixty cigarettes every day since his early teens.

On June 29, 2004, Stefan was admitted to London Bridge Hospital, where a part of his lung was removed; within three days, Stefan was diagnosed with ARDS and sent back to ICU. Stefan was intubated and spent the next five weeks on a ventilator. While in ICU, the nurses hosed him down and wrapped wet towels around him in an attempt to lower his core temperature, which was critically high. At one point, Stefan was on fifteen different medications and he had at least one drug he was resistant to, causing more concerns for the physicians.

During that time, Stefan did nothing but hallucinate. He believed Gita, his love, was having an affair with a nurse and also imagined the nurses were being cruel to him. Stefan’s main hallucination was that he and his friend had invented 5th generation software and were being pursued by a syndicate called the Carocel.

Although at times Stefan was lucid, his hallucinations spanned years, he was terribly upset the first time he was alert, as he was told that his mother was at the hospital because he had hallucinated that she had been dead for years.

Stefan finds that to explain to someone who has not experienced this, the difference between a hallucination and a dream/nightmare is extremely difficult. In a dream, when one falls off a tall building, normally that person will wake up before he or she hits the floor; in Stefan’s 'Hallucination World' he not only hit the floor, but also felt every bone shattering experience.

After five weeks, Stefan was moved from ICU to the high dependency unit and after a few days, back to his room. But things were still not good; Stefan had no muscles left and was incredibly weak. And he now discovered he was afraid of the dark and also claustrophobic; he has since overcome both of these fears.

Stefan has learned to deal with my ARDS by fighting one problem at a time.

When Stefan still had his chest tubes, and the fluid was not draining, another lung specialist was called in. The specialist decided yet another was required, but Stefan explained he was claustrophobic and went into a panic attack when a surgical mat was put over his face; the specialist proceeded to drill even though Stefan was not anesthetized as his lung had begun to collapse. A very painful experience, notes Stefan.

After a couple weeks, Stefan began to make progress and the chest tubes were removed; Stefan even started going to the pub, accompanied by a nurse and Gita. The doctors thought that getting out would be good for Stefan and the trips were encouraged by the medical staff.

On the funny side, Stefan was Oxygen dependent and a nurse forgot to check the Oxygen can before they went out to a local bar; it ran out and they were ten minutes away from the hospital.

It was decided as soon as he could walk, Stefan could go home!

Sadly, a few days later, Stefan’s consultant advised him that he had another lung infection and even though he had been told that his body could not take anymore medical procedures, the specialist informed him that there were still things that could be done. Stefan replied that he could not take anymore!

The following day, the specialist, along with Stefan, concurred that Stefan should go home and fight the infection with an antibiotic. It would take about three weeks for them to know if he beat this latest infection.

Stefan has been home since September 8, 2004, and he is proud to still be here. He no longer smokes. He attributes his survival to the hard work and dedication of the London Bridge Hospital ICU and the love of his ‘other half,’ who stayed with him 24/7.

Stefan says, “I do not think I have beat ARDS or Cancer; this is round one!” Stefan says that the one thing he possesses, which he sees as something he has in common with other survivors, is the sheer determination to keep on living.

Stefan resides in London, with Gita, where he works as at a radio station as a facilities manager.

- Back to Top -

ARDS Survivor: Mike Gillespie

Mike is a Miracle Man

Photo of Mike and DebIf anyone does not believe in prayer, they had better take a long look at Deborah’s husband, Mike, because he is truly a Miracle!!!!

Mike and Deborah went to Duke on August 15, 2004 in order for Mike to have elective procedure to correct his atrial fibrillation. He had several cardio conversions before this and they just did not seem to correct his problem. Medications were also unsuccessful. The last option was to have an ablation done to Mike’s heart. The procedure was to be performed on August 17, 2004 and Mike was to return home the following day.

The ablation procedure was a success. The only problem was in the early morning the next day when Mike’s heart went into atrial flutter; his heartbeat was in the 160’s. The doctors decided to let Mike rest on 8/18 and the following day, perform a cardio conversion, which was a success. Mike even said that it was the best cardio conversion that he had ever had!

Mike was full of energy when he came back to the room. That afternoon, Mike and Deborah walked the halls and waited for the Doctor to discharge Mike. However, the doctor requested that Mike spend one more night at the hospital so they could make sure he had the proper dosage of heart medication before traveling back to Greenville, SC.

They thought, “only one more day,” and did not fight the request. Deborah stayed at a motel across the street, getting much needed rest before the drive home to Greenville, SC.

When she arrived at the hospital the next morning at 6:00 A.M., Mike said that he felt like he had the flu. Both brushed it off because they were told that Mike would probably feel like a truck had hit him for a couple of weeks. But Mike seemed more sluggish than normal. Still, he pushed himself because he was ready to go home. Mike’s doctor checked Mike and said he needed a chest x-ray and VQ Scan; his lungs seemed to have a little fluid. They wanted to make sure everything was okay. Although the x-ray could be done on Friday afternoon, the Scan could not be done until Saturday. “One more night”. Deborah left Mike at 2:00 A.M. Saturday to get a little sleep so she could make the drive home after the test.

When Deborah arrived at the hospital at 7:00 A.M. Saturday, Mike’s oxygen level was at 56. At 9:00 A.M. Mike was taken for the VQ Scan. Mike looked really bad and Deborah had no idea at the time that though Mike was conscious, he was really out of it. As soon as Mike laid flat on the table for the test, he started complaining that he could not breathe. Deborah watched every move that he was making. The technician tried to coach him to lay “just a little longer” until finally he told her that he had to get up. When he rose, he called to Deborah and began coughing up blood. Suddenly, Mike was rushed to the Cardiac Care Unit.

Deborah was told that Mike needed a tube down his throat because he could not breathe. Deborah was still thinking that “everything’s going to be okay because God couldn’t possibly take Mike away from me.”

Deborah called her Mama and told her to “start praying.” Deborah called their son, Michael, who lives in San Francisco and told him to catch the first flight to Raleigh. Those were difficult phone calls for Deborah. She knew Mike was in God’s hands even though the Doctors were doing everything for him.

When Deborah got to the seventh floor, the physicians told her that Mike’s lungs had completely shut down and they did not expect him to survive the night. Mike had ARDS (Acute Respiratory Distress Syndrome). Deborah wondered, “HOW COULD THIS BE?” Mike was in a paralyzed coma and on life support. Deborah said that to see her husband, so helpless, was the worst day of her life.

Mike stayed in a coma for thirty days. It was touch and go the first few days after Mike was out of the coma. Mike could not answer simple questions and that was a concern. However, Mike knew Deborah, when he saw her, he pulled her hand to his mouth and kissed it. Deborah knew then that no matter what God handed them, they could handle. Deborah had her husband back.

When Mike really woke up, he skyrocketed!! Every day, the Doctors would shake their heads and say “Unbelievable.” Mike passed everyone’s expectations.

Mike is still weak but getting stronger every day. Deborah told Mike what all of their friends and family did while he was hospitalized. All he can say is “Unbelievable.” They had prayer chains going from all over this world and that is what kept Mike fighting.

Mike went back to work part-time on December 6th. On January3, 2005, he begins work full-time. He has come such a long way.

Mike is a living MIRACLE!! No one knows how many days are left on this earth, but Mike and Deborah have both learned through this that we must praise God every day for each day he has given them, for there may not be a tomorrow. Deborah says, “Please continue to keep us in your prayers.”

- Back to Top -

ARDS Wilma Jean Cochran, the World is a Poorer Place... Feb 27, 1943 - Jan 18, 2005

On May 25, 2004, Wilma, who is known by her middle name, Jean, went into the hospital for a successful heart valve surgery. Though she was born in Sunnyside, Georgia, she has lived in Mobile, Alabama for most of her life. After only a couple of days after the surgery, Jean took a turn for the worse, and one of her nurses mentioned she had ARDS and was being put on a vent. Rod, his two brothers and their father, Donald G. Cochran Sr., had no idea what this meant. Jean's doctors never used the term ARDS nor did they discuss what this meant to the family.

However, Jean's family did some research and learned just how serious this diagnosis was. Jean was on the vent and in a coma in the ICU for months. In July, 2004, Donald called and told his sons that their mother was going downhill very fast; doctors had told him that she had less than 1% chance to make it.

The doctors recommended that they pull the vent and let Jean pass. Rod and his brothers wanted more information before any decision was made.

The three went to the hospital at 5:00 AM to catch Jean's doctor making his rounds. They cornered him, and said they needed more information. The doctor told them the same information that he had told their father. He said he was 99.9% sure Jean would not survive.

Rod and his brothers agreed that as long as there was some chance, some hope, they would not pull the vent. And over the next four months, Jean got better and better! She was moved to another hospital and on Thanksgiving Day, to Rod's surprise, she was sitting up in her hospital bed, with no vent, talking up a storm!! It was the best Thanksgiving ever! Jean had been on the vent from May 27, 2004, until November 16, 2004.

Jean continued to do well over the next month. But then the insurance company said they would not pay for her to stay in the hospital any longer, even though her doctor, the hospital, and her therapist recommended that she remain in the hospital.

Without any other choice, Jean came home the day before Christmas. The entire family was together on Christmas and it was wonderful. Jean was more alive than Rod has ever seen her! She had the biggest smile on her face the entire time and never stopped talking.

However, after the holidays, Jean went down hill fast. Two weeks after being sent home by the insurance company, she was admitted to the ER with rapid breathing. After that, she got a blood clot in her lungs and she nose dived real quick. In a little more than 24 hours, she was gone. The whole family was with her again, this time to say their 'good-byes.'

Jean was sixty-one years old and beautiful. Rod says, "I really believe her time to go was several months ago, and God heard our prayers and gave us this extra time with her at Christmas."

Jean passed away on Tuesday, January 18, 2005.

Although Rod lost his mother only recently, he says that he believes education about ARDS is very important and if he can help just one family get through this and be informed, it is worth it!

- Back to Top -

ARDS Survivor: Donna Brady

Photo fo DonnaOn Thanksgiving Day 2003, getting ready to go to her daughter's house for dinner, Donna Brady noticed she was short of breath. This was not anything new, as Donna had already been treated for COPD for the past year and a half and was on oxygen at night.

However, as the day progressed, Donna's shortness of breath continued and she felt so tired.

The day after Thanksgiving Donna thought that she felt a little better; she would see her primary physician on Monday, at the small primary care center where she worked. But, on Monday, Donna felt so bad; she did not have the energy or breath to get dressed and go to work. On Tuesday, she called her friend, also a coworker and told her she could not come into the office. Her friend immediately said to get dressed, she was coming to get Donna.

Although Donna's doctor wanted her to go to the ER, Donna assured her she would be find with some antibiotics and prednisone. The next day, Donna went to work. She worked the rest of the week even though she was still very short of breath. She thought she could 'tough it out' until the medications started working.

The following week, Donna still worked every other day, but felt terrible. She was encouraged by her coworker and doctor to the ER, but Donna did not want to wait hours to be seen.

On Thursday evening, Donna asked her sister to stay all night with her; she felt quite ill. At about 6 am on December 12, 2003, Donna asked her sister to call an ambulance. The ambulance took Donna to St. Mary's Hospital in Huntington, WV.

At the ER, a chest x-rays determined that Donna had pneumonia and respiratory failure. Donna's son was told she would have been dead within 3 or 4 hours if she had not came to the hospital.

IVs were started and Donna was intubated; she was put in a drug induced coma. Donna's husband, Don, who had been in Canada, arrived at the hospital later that day where he spent the next ten days with Donna. On Dec 22, 2003, Donna got a trach and feeding tube.

Finally, on Christmas Day, Donna opened her eyes and tried to figure out what was going on. Though she tried to move, she could only move her head from side to side and her right arm. Donna thought that she had a stroke. Donna's husband then asked her if she what day it was and explained it was Christmas. He told Donna what had happened for the last two weeks. Donna's sister and three children came to see me that night. They communicated by using sign language. Donna was so thankful for her family, who were so supportive.

At this time, Donna began having terrible nightmares, one making her so upset that her husband was called to the hospital at 6 AM to calm her down.

On January 1, 2004, Donna was moved to the Pulmonary Care Unit. Several of the nuns stopped in Donna's room and told her that they believed it was a "miracle" that she had survived. On January 8, 2004, Donna and her family celebrated Christmas with her in the hospital.

About one week later, Donna's trach was removed and she was moved to a Skilled Nursing Unit. There Donna received physical and occupational therapy for the next month. It was a slow progression but soon Donna was walking on a walker. Donna continued to make progress and on February 13, 2004, she was released from the hospital. After sixty-three days, Donna returned home with a walker and oxygen; Donna was very weak, but at least she was alive!

After Donna was home, she began to search online to find others with similar experiences, and she found the ARDS site. After reading some of the stories so similar to her own, Donna no longer felt so alone and knew that the nightmares while in the hospital and since coming home were not uncommon, as well as the memory loss and numbness in her legs. Many of Donna's questions were answered and her fears calmed.

Donna has been unable to return to work and is now on disability; Donna lives in West Virginia where she spends her time with husband, Don, enjoying her family, her three children who are 26, 21, and 15, and her husband, and scrapbooking all of their memories.

- Back to Top -

Debra Clifton, The World is a Poorer Place

Photo of Debra Clifton and her sonsDebra had surgery in June 2004 to remove an ulcerative colitis and had an ileostomy. Then on September 24, 2004, she was admitted to Atlanta Medical Center to have a reversal done. Initially, Debra was doing well and even given food. However, she developed an abdominal fistula and had to have another surgery.

Unfortunately, this surgery was not a success and waste material emptied into her abdominal cavity, causing another surgery to clean her out and to again do an ileostomy on the opposite side of her abdomen. After that, Debra developed peritonitis and then became septic. Shortly after, she was diagnosed with ARDS, staph, strep, ecoli, pneumonia, and pseudomonas.

Debra was sedated in paralytic coma for 24 days. She kept blowing holes in her lungs until she had ten chest tubes at once, five in each lung. She was on three kinds of ventilators and an oscillator for 59 days. Her ICU stay was a total of 85 days.

Debra has come so far in her recovery. She has had therapy, but still turns her feet out and says she walks like a duck with a walker. Although she came home without any oxygen, Debra gets out of breath easily. She was released to a nursing facility on February 23, 2005, two days short of five months. She can have reversal surgery again in a few months but now lives with an ileostomy.

Debra was only given a ten percent chance of survival during the worst of her hospitalization, but her family never gave up hope. When everything looked especially bad, Debra was given steroids which seemed to help. However, what helped most was prayer and the grace of God; this is what brought her through.

Debra had done well since her previous bout with ARDS at the end of 2004.
Debra still had an ileostomy because of her removal of her colon due to ulcerative colitis.

But on November 29, 2005, she became unable to hold food down. She was taken to South Georgia Medical Center in Valdosta, Ga. A cat scan showed she had a blockage in her intestine. She stayed in the hospital until December 22, 2005. She was on a stomach pump most of this time and was fed TPN by IV. The doctors were hoping that the blockage was caused by a kink in the intestine and that it might correct itself.

There was no colon surgeon in Valdosta and none of surgeons wanted to operate on her because of her prior medical history. She developed a blood clot in her arm and had to be given blood thinner. She came home and lived on Ensure and other liquids for four days.

Debra was able to attend Christmas gathering at her 91 year old Grandfather's on December 23 and was with her family on Christmas Day. She attended the birthday party for her nephew on December 26. But on December 27, 2005 she became very sick again. She was re-admitted to the hospital and tests showed the blockage was still there.

On January 2, 2006, Debra was transferred to Crawford Long Hospital in Atlanta, Georgia. On Friday Jan 6, surgery was done to correct the blockage and reversal surgery was done at the same time. She was doing well, but on January 11, the doctor discovered a drainage and she was operated on again to correct this leakage. That night she had problems maintaining her oxygen level.

The next day, Debra was diagnosed as septic and moved to the intensive care unit. On January 13, she was diagnosed with ARDS once again, was intubated and taken to the operating room once again to clean out an abcess.

Debra had also developed pneumonia in both lungs. In a day or so she had MRSA. She did improve and oxygen level was down to 40% with a peep of 5, Her saturation was 96 at this time. She was taken off one of the medications that had her in a paralytic coma. By Friday January 20th, she was off all sedation medicine but refused to wake up. There was no muscle tone...no reactions of any kind.

On January 21 her head was drawn to the side and she looked as if she had had a stroke. She had started losing body fluids rapidly. Her electrolytes were irratic. A cat scan showed that her brain basically exploded. She was brain dead. She died in the early morning hours on January 25, 2006.

Debra's family made it through ARDS once and ten chest tubes, but not so this time. They are still trying to grasp the fact that she is gone. Debra's mom said, "She had wonderful times with her family during 2005. God gave her back to us for a year. Now she is gone to be with him." Please pray for Debra's family.

- Back to Top -

Bob Jayroe's ARDS Story

Bob and Mary AnnIt all started for Bob Jayroe on May 25 in Palo Alto, CA with a sore throat when he was working with Lockheed Martin on a NASA/JAXA funded solar telescope project. Bob waited to get home and see if it would get worse or go away. Since it did not go away, Bob went to his doctor and was treated me with a general antibiotic for a sinus infection. Soon they learned Bob had strep, so he switched antibiotics. Then Bob developed a yeast infection in my throat, which also had to be treated.

Bob did not get any better; his blood pressure skyrocketed and he had Mary Ann take him to the emergency room. The next morning, Bob’s doctor agreed to see him. Bob said that for the first time in his life, he was afraid, that he felt like he was dying.

Bob was admitted to the hospital. His sodium level was out of whack; he was on the verge of having a seizure. Bob’s doctor called in several specialists. After several days, they confessed hat they had no idea what Bob had; all they could do was treat the symptoms. After 8 days in the hospital, Bob was told that he had a variant of Guillon Barre, which caused double vision and some loss of control of his tongue.

Bob was released from the hospital on June 25 and allowed to go on his planned family vacation. Bob, his wife Mary Ann, and their son and daughter in law left for Paris on July 9. They took the Eurostar train from Paris to London on Saturday, July 17. They planned to return to the US on July 27.

On Monday morning, July 19 Bob woke up at 6:00 am, and could not breathe. He called his son, Rob, and was gasping for breath. Rob immediately alerted the front desk to call the paramedics, and then raced to Bob’s room. The paramedics arrived and while there, Bob’s breath returned. They thought that Bob was just having an anxiety attack. Later that day, when Bob was napping, he was awakened unable to breathe again.

Mary Ann had the front desk call a doctor; the doctor called an ambulance after his exam. Bob remembers stepping in the back of the ambulance; that was the last thing he remembered for the next five and a half weeks. He was admitted to the ICU in Guy’s and St. Thomas’ Hospital that day.

Bob spent the next eight weeks in the ICU. Though not told what his precipitating cause was, Bob eventually was told that he had Acute Respiratory Distress Syndrome (ARDS). He was also told he nearly died several times. Bob was put in a drug-induced coma; still, he would fight the ventilator.

After being on the ventilator for several weeks, Bob developed ventilator pneumonia (VAP); later, Bob got a staff infection. Bob also recalls vivid dreams. He lost twenty-six pounds, all his muscle tone, and had to relearn to walk and swallow.

In September, Bob was released from St. Thomas’ via Iceland, New Foundland, and Toronto directly to Huntsville Hospital. The flight took twelve hours. After one week in Huntsville, Bob spent two and a half weeks in rehab and was released to his home on October 6. Bob finished outpatient PT at the end of November, but continues to work out on his own.

Now Bob is driving, walking, and working forty hours a week. Bob says that ARDS is the most discomforting illness he has ever experienced. Initially, Bob woke up every half hour or so, due to his dry mouth. Everything tastes funny. Bob’s combined shortness of breath and muscle weakness makes everything difficult.

But Bob looks at the positives; he is a little stronger every day and his breathing has progressed. Several people at work comment that he is beginning to look like the Bob they remembered me.

On Christmas, his daughter and son-in-law gave Bob a special gift; it was a scrapbook, inscribed on the cover with the Grateful Dead phrase, “What a long strange trip it has been.” On the inside were two inches of emails from London to America and back during Bob’s two-month stay in the ICU at St. Thomas’ Hospital. When Bob started reading the scrapbook, he could not put it down. It was an incredibly moving tribute.

- Back to Top -

Eddie Mercado, The World is a Poorer Place...

Photo of EddieEddie Mercado was a young, 26 year old gentleman, single and full of life. He traveled a lot working construction. In January, Eddie had a cold, which was treated with antibiotics. On January 7, 2004, at about 2:00 p.m., he told his sister, Amy, that he could not take a full breath. Amy took him to the ER

At the ER, Eddie was assessed and given oxygen; he was also treated with different antibiotics. At approximately 6:00 PM, Eddie was intubated. While they were intubating him, he aspirated which complicated his condition.

He was moved from a smaller, local hospital to a larger medical center in Idaho Falls, Idaho. Eddie was placed in ICU and put into a coma. He was hooked up to a respirator and had close to twelve IV bottles, heart monitors and a couple other machines to monitor his blood pressure and his oxygen saturation.

Doctors told Eddie's family that it would be a long battle but they were confident he would recover and go home. After the second week of no progress, only constant set backs, doctors announced he had ARDS and were afraid he had MRSA.

Eddie's family rallied around him, showing their support and love. Carlos said that his oldest son, his companion and friend, last the battle on February 2, 2004, at approximately 4:15 a.m. The day before was Superbowl Sunday and Carlos sat with him and described the plays for him. Carlos knew that Eddie was slipping away and wanted the last day to be special so he held his hand and told him constantly that he loved him and asked him to remember his father when he gets to heaven. Eddie leaves behind siblings Erica, Amy, Jerica, Alberto and Matt, his parents, Linda and Carlos, as well as many other relatives and friends. His youngest brother Matt loved him so much that every night he ends his prayers by saying, "father in heaven, please take care of Eddie in heaven." Linda, his mother, spent every minute she could with his beloved son. The family says,
"We still miss him so much."

- Back to Top -

Trish Framel, ARDS Survivor Story...

Photo of Trish FramelOn May 27, 2004, thirty-three year old Trish left her home in Owasso, Oklahoma, to take her stepdaughter, Brooke, to a Memorial Day soccer tournament in Lexington, Kentucky. For the week prior, Trish had been experiencing chills, backaches, and bouts with shortness of breath but she attributed these to being under more stress than usual.

Brooke and Trish enjoyed their weekend in Lexington even though her team was eliminated early from the tournament. They left Lexington to return home around 10:00 am on Sunday, May 30th, but got just inside Illinois before Trish had grown severely ill. She assumed she had food poisoning from a fast food meal; They stopped at a hotel, feeling that she could just 'sleep it off.' Trish was confident that then she would be fine to drive the rest of the way home the next day.

However, Trish continued to deteriorate as the afternoon and evening wore on and eventually called an ambulance around 9:00 p.m. First Trish was taken to a small community hospital in Illinois but then transferred several hours later to Evansville Deaconess Hospital in Evansville, Indiana. Both hospitals kept Trish's husband, David, informed by cell phone as he and Trish's brother drove through the night from Oklahoma to Indiana.

Upon her arrival to the hospital in Evansville, Trish was put on a respirator, as her lungs and other organs began to fail. Trish's family was given a bleak outlook. Her doctor explained that my blood was septic for some yet unknown reason, and he felt that Trish had only a 25% chance of survival.

Over the next four days, a team of doctors worked diligently to save Trish, locating the source of sepsis as a fibrous mass in her uterus that had 'died off.' As soon as the surgeon was able, he performed a total hysterectomy, removing the 'poisonous' uterus. Slowly, then, Trish's body began to respond positively.

Trish was on the respirator for a total of 10 days, then received treatment by CPAP for three to four additional days. Trish spent 18 long days in the hospital (16 of those in ICU). Trish's family stayed with her during this difficult time.

Because of the incredible medical care Trish received at Evansville Deaconess Hospital and the faithful prayers of her family, friends, and coworkers, she is alive to tell her story. It has been nine months since Trish left the hospital, and she continues to recover, both physically and mentally.

Trish finds it comforting to read the stories of other survivors on this site, as she is now aware that many of the feelings/emotions she has experienced are very 'normal' for a person who has survived ARDS. Trish wants to reach out to others who are dealing with ARDS and welcomes contact by others.


- Back to Top -

Dee, ARDS Survivor Story...

Photo of DeeOn September 11, 1998 Dee entered the hospital for an out-patient surgery to remove an ovarian cyst. After the surgery Dee was shivering, so the doctors kept her overnight for observation. They told her family that the shivering may have been caused by the anesthesia. The following morning her blood pressure had dropped dangerously low and she was in severe pain.

Dee was transferred to the intensive care unit, where she was diagnosed with septic shock due to a perforated bowel. Surgery was done to repair the bowel at noon on September 12 th. During the surgery, Dee stopped breathing three times and was resuscitated. She was then placed on a ventilator. The same day Dee developed ARDS.

She remained in ICE for 28 days on ventilation. She experienced hallucinations from the medication and several set backs. Her family was told that she may not survive.

She finally was able to breath on her own and was released several days later. Her recovery took over a year and required an additional surgery. She experienced severe depression and short term memory loss.

Dee returned to work six months after her illness (too soon) even though she struggled with the depression and memory loss.

Six and a half years later, her memory has improved and life is full. She is happy, enjoying her grandchildren and living in Phoenix.

- Back to Top -

 

To Browse ARDS Stories

Main |  Page One |  Page Two |  Page Three |  Page Four |  Page Five |  Page Six |  Page Seven  |  Page Eight |  Page Nine |  Page Ten | Page Eleven

If you would like add your story, please fill out our Contact Form. The stories will be edited for length so that we can include as many as possible.


Main |  Free Newsletter |  About |  Foundation Views |  Facts |  Corticosterioids in ARDS |  ICU Delirium & Cognitive Impairment |  One Year Outcomes  |  Incidence Outcome Acute Lung Injury |  I Can't Breathe (Dyspnea) Post-ARDS Rehab |  Post-ARDS Effects |  Intensive Care Units-Podcast |  Post-ARDS Tips |  1001 Loving Ways to help | Resources |  News & Events |  Media Kit |  ARDS Poster  |  ARDS Xray Progression |  Survivor Registry | ARDS Stories |  Patient/Family Care Center |  Discussion Forum |  Immediate Support |  Make a Difference |  ARDS and Sepsis |  Prone Therapy |  Healing Power of Music |  Body, Mind, & Spirit |  Medical Board of Directors |  ATS/ARDS Foundation Research Grant | Online Petition Letter |  Research Survey |  Patient & Family Advisory Board  |  Children and ARDS |  Inpatient Rehab Questions |  Long Term Acute Care Facilities | ARDS Slideshow | privacy policy | Kids Kare Kards | ARDS Video Project | sitemap


The ARDS Foundation
3330 Dundee Rd. Suite C4
Northbrook, IL 60062
PH: 312-749-7047

Contact The ARDS Foundation

Eileen Rubin Zacharias, President
Paula Blonski, Vice President

The ARDS Foundation

Bookmark and Share

Affordable Web Design Affordable WebDesign byWeb Dezign Studio